We all are impacted by, and reap the benefits of, medical research discoveries. From over-the-counter drugs, to healthcare policies and educational interventions, many of these advancements are a result of incredible feats, decades of work, and sometimes serendipitous events. Join us as we sit down with Harvard researchers to discuss these captivating behind-the-scenes stories of research.
August 7, 2024
Data Sharing in Community-Engaged Research
Sharing data in the context of community-engaged research involves specialized practices and considerations. Our latest episode, hosted by Karen Emmons, PhD, faculty lead for Harvard Catalyst’s Community Engagement program, discusses critical aspects of data sharing and privacy that researchers need to know with Susan Adams, PMP, and Cheryl Clark, MD, ScD, of Massachusetts League of Community Health Centers.
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Karen Emmons is faculty lead of Community Engagement at Harvard Catalyst. She is a professor of social and behavioral science at the Harvard T.H. Chan School of Public Health. Emmons is a behavioral scientist with a strong track record of funded research in community-based approaches to cancer prevention in a variety of settings that serve historically disadvantaged communities, including low income housing and community health centers. Her work targets inequalities related to a range of cancer risk factors, including nutrition, physical activity, sun exposure, tobacco and second-hand smoke exposure, and cancer screening. She has particular expertise in implementation science, particularly in community health settings, and has been actively involved in national efforts to develop implementation research and training programs. She is an elected member of the National Academy of Medicine, and past president of the Society of Behavioral Medicine.
Susan Adams, PMP, is vice president of health informatics for the Massachusetts League of Community Health Centers. In her role, she oversees the Health Center Controlled Network and Health Informatics team, providing technology and data assistance to community health centers across the Commonwealth. Her current work focuses on various digital health tools, interoperability initiatives, and using advance data analytics for identifying and addressing disparities in healthcare for community health centers. Adams has worked in healthcare technology for 30 years, previously serving as the chief information officer for a large federally-qualified health center where she was responsible for the strategic direction and management of information technology, quality data & reporting, medical records, and referrals departments. Her strength lies in her ability to think outside the box and use technology and data to improve operational efficiencies.
Cheryl Clark, MD, ScD, is the executive director and senior vice president of the Massachusetts League of Community Health Centers’ Institute for Health Equity Research, Evaluation & Policy (IHE). She is also associate chief for equity research and strategic partnerships for the Division of General Internal Medicine and Primary Care at Brigham and Women’s Hospital. Clark is a physician of hospital medicine and a social epidemiologist with a research focus on social determinants of health and healthcare utilization in diverse populations, including preventive care for cancer and cardiovascular disease prevention. She has extensive experience in community-based participatory research, and in the implementation and evaluation of innovative strategies to address social determinants of health and care utilization in communities with high burdens of cardiovascular and cancer risk factors. Clark is the PI of the Mass General Brigham Jackson Heart Study Vanguard Center and PI for engagement of the New England National Institutes of Health All of Us Research Program.